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lekotalk:  February 2008

Contents:

 


Massive Effort Unites Boy and Soldier

By Carrie Antflinger - Associated Press

Mauston, WS - Captain Scott Southworth knew he’d face violence, political strife and blistering heat when he was deployed to one of Baghdad’s most dangerous areas. But he didn’t expect Ala’a Edden. Abandoned on a Baghdad street at the age of three, Ala’a was now nine, strong of will but weak of body. Born with cerebral palsy, he had limited speech, used a wheelchair and weighed just fifty five pounds. He lived with twenty kids with physical and cognitive disabilities at the Mother Teresa orphanage in Baghdad, under the care of nuns who preserved this small oasis.

On Sept. 6, 2003, halfway through his 13 month deployment, Southworth and his military police unit visited the orphanage. They played and chatted with the children. Southworth was talking with one little girl when Ala’a, crawling on the floor, approached the soldier. Black-haired and brown-eyed, Ala’a spoke to the 31 year old American. He recalled the bombs that struck government buildings. “Bomb-Bing! Bomb-Bing!” Ala’a said, raising and lowering his fist. “I’m here now. You’re fine,” the captain said. Over the next ten months, the unit returned to the orphanage again and again. The soldiers would race kids in their wheelchairs, sit them on Humvees and help the sisters feed them. To Southworth, Ala’a was like a little brother. But Ala’a secretly began referring to Southworth as “Baba,” Arabic for “Daddy.” Just before Christmas, a sister told Southworth that Ala’a was getting too big and would be moved to a government-run facility within a year. “Best case scenario was that he would stare at a blank wall for the rest of his life. I couldn’t allow that on my watch. I’ll adopt him,” Southworth said.

No wife, no home
Before Southworth left for Iraq, he was chief of staff for a Wisconsin state representative. He was single, worked long days and squeezed in his service as a national guardsman. There were so many reasons why he couldn’t bring an Iraqi boy with disabilities into his world. He had no wife; he knew nothing about raising a child with special needs; he had little money and planned to run for district attorney in his home country. More important, Iraqi law prohibits foreigners from adopting Iraqi children. Southworth prayed and talked with family and friends. He imagined meeting God and Ala’a in heaven, where Ala’a asked: “Baba, why didn’t you come back for me?” And so, in his last weeks in Iraq, Southworth received approval from Iraq’s Minister of Labor to take Ala’a to the US for medical care.

Humanitarian parole
His parents filed signatures so he wouldn’t miss the cutoff to run for district attorney. He won office – securing an income. Everything seemed to be falling into place. But when Southworth contacted an immigration attorney, he was told it would be nearly impossible to bring Ala’a to the US. Undaunted, he completed paperwork to bring Ala’a over on humanitarian parole, used for urgent reasons or significant public benefit. A local doctor, an expert in cerebral palsy, and a Minneapolis hospital all said they would provide Ala’a free care. Other letters of support came from a minister, the school district, the lieutenant governor, a congressman, a chaplain, a sister at the orphanage and an Iraqi doctor. “We crossed political boundaries. We crossed religious boundaries. There was a massive effort – all on behalf of this little boy who desperately needed people to take action and not just feel sorry for him,” Southworth says. He mailed the packet on Dec. 16, 2004, to the Department of Homeland Security.

On New Year’s Eve, his cell phone rang. It was Ala’a. “What are you doing?” Scott asked him. “I was praying,” Ala’a responded. “Well, what were you praying for?” “I prayed that you would come to take me to America,” Ala’a said. By mid-January, Homeland Security called Southworth’s attorney to say humanitarian parole had been approved. Within three hours, Southworth had plane tickets. When he saw Ala’a in the Baghdad airport “forever started.” They made it to Wisconsin Jan. 20, 2005. The next morning, Ala’a awoke to his first sight of snow. On June 4th, Ala’a officially became Southworth’s son.

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Fundraising Special Events – Successfully Raising Funds and Fun

Photo - Rachel leads her dad, Craig Weitzel, at the Lekotek RunWith 550 participants the fifteenth annual Lekotek run was the most successful to date, raising $52,000. As the presenting sponsor, Lekotek appreciates the generous and continued support of The Marcus Foundation. Additional sponsors include: Georgia Perimeter College, Piedmont Construction, J&E Real Estate, Cushing & Morris, Ippolito’s, American Elevator, Children’s Healthcare of Atlanta, The Maslia Foundation, Repro Products, Pittman Construction, Szabo Associates, Victor Realty, Rainmaker Consultants, Sotto Design & Development, Sutherland, Asbill & Brennan, Performance Medical Centers, The Home Depot, Atlanta Psychological Services, D.A.D., Wells Fargo Foothill, Hennessy Lexus, Abbott Labs, B&M Auto Repair, Spikes Running Company, Herman Homes, Career Sports & Entertainment, Marvin F. Poer & Company, Tucker Optimist Club, Kurt Salmon Associates, Roy’s Hawaiian Fusion, Ford Motor Company, Craig Automotive, CGI, Suwanee Realty, Cliff Valley Office Partners, Kiddo’s Clubhouse, Barnes, Broyles & Associates, Olanksy Dermatology, QuikTrip, Ed Voyles Acura, Graphics Central, Starbucks Coffee (Dunwoody), The Bagel Palace, Kid’s Creek Therapy, Atlanta Coc-Cola Bottling Company, High Cotton Apparel, National Premiums, Washington Mutual Card Services, Wal-Mart, PowerBar, Robek’s Juice, MyProduceGuy.com, Sweet Tomatoes and Discovery Toys.

In November a three day silent auction was held at the Athletic Club Northeast. With 250 donated items that included services, dinners, weekend get ways, tickets, subscriptions and sports memorabilia the event was successful in raising $13,000. With waiting lists at Lekotek sites, funding from both events will make it possible to increase part-time staff and twenty four children will receive services immediately.

Mark your calendar for the Lekotek Golf Tournament, May 5th, 2008.

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CAI Golf Tournament Raises Funds for Lekotek

The Georgia Chapter of the Community Associations Institute (CAI) is part of a national nonprofit organization created to educate and represent residential condominium, cooperative and homeowner associations. In its role as the voice for Georgia’s community associations, the Georgia Chapter of CAI advances excellence through educational seminars, networking, workshops, programs and publications. The CAI-Georgia Chapter donates part of the proceeds from the CAI-Georgia Golf Classic to Lekotek. CAI members are happy to help in this way and remain proud of their relationship with Lekotek. This year’s check to Lekotek exceeded $7,000 and is allocated to the satellites housed at Children’s Healthcare of Atlanta.

Photo of Georgia Chapter of the Community Associations Institute staff presenting check to Lekotek of GeorgiaL to R: Julie Jackson, of CAI-Georgia, Diane Lasek of Arborguard Tree Specialists, Dale Pendergraft of All South Renovations, Neal Back of Back, James, Mansour & Co., Helene Prokesch of Lekotek of Georgia, Ashlie Bisig of SERVPRO of North Fulton and Steven M. Winter of Weinstock & Scavo, P.C.By Brenda Ali

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Magazine Highlight:  Kids Enabled

by Beth McGaw and Kristi Lockwood

It all started over a cup of coffee, two friends getting together to share stories about their children. But their kids weren’t “typical” kids. They happened to learn a bit differently than their peers. As the friends sipped their coffee, they posed many questions to each other. How do you keep the momentum going? How do you keep their self-esteem in tact? How do you find the right resources? Where do you start and where do you go for help?

From that meeting, a seed was planted. If we as parents of children with learning differences felt frustrated by searching for these answers, then we were sure other parents did as well. Hence, Kids Enabled magazine was born. The idea since has grown to help other parents locate educational and therapeutic interventions and resources for their children. In Atlanta, there are professionals, schools and organizations eager and ready to help, but weeding through the seemingly limitless choices makes it difficult for busy parents to select the right options. This is especially true when these resources are not found in one place. We often have to stumble upon them by asking teachers, doctors, therapists and other parents before we find them. As co-editors and publishers of Kids Enabled we strive to make these choices easier for parents. We aim not to define children in terms of labels, but rather to focus on the interventions and strategies that enlighten parents to consider options they might not have known about before. Our goal is to partner with parents and together make the maze of learning differences easier to navigate.

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IEP Tips for Parents from the Georgia Advocacy Office

Students with special needs are required by law to have an individual educational plan and these meetings are typically held at the end of each school year. However, a parent may request an IEP meeting anytime.

Tips for the meeting:

  • An IEP meeting can be intimidating so plan to stay calm. Approach the meeting with the assumption that everyone wants what is best for your child.

  • You are a member of the team and your opinions should be valued equal to those of teachers and therapists.

  • Bring someone with you. Ask a parent, friend or professional to attend.

  • Keep the meeting positive and focus on strengths.

  • Make sure the IEP goals for your child are reasonable and measurable.

  • Discuss modifications, transitions, therapies, evaluations and available resources.

  • Establish a parent-school communication plan to follow the meeting.

  • If you are not satisfied with the plan, ask to take a copy with you to review before signing.

After the meeting:

  • Discuss (with your child) any changes that will take place.

  • Communicate with your child’s teaches and therapists regularly. Consider a monthly meeting with everyone in attendance to monitor progress.

  • This avoids waiting until the next scheduled IEP meeting to determine if objectives have been met and maintains ongoing communication.

Remember:

  • You can call an IEP meeting at any time.

(This article was edited with permission from JustKids magazine – Atlanta Parent’s annual issue that focuses on children with disabilities. Lekotek commends Atlanta Parent for this issue which is always comprehensive and extremely well done.)

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Little Champs 3-in-1 Sports Center

Photo of Little Champs 3-in-1 Sports CenterWith this multi-sports center, everyone can have fun taking turns batting a baseball, kicking the football or shooting baskets. This sturdy sports center is made by Little Tykes. The football and baseball games are stabilized making it easier for children with gross motor delays to kick or hit the ball. A child who can’t stand can enjoy shooting baskets from a sitting position. With each basket, the sports center responds with cheers, building self-esteem. The digital display counts each basket so in addition to developing eye hand coordination, the child learns and practices counting. In addition, as children take turns with friends and family members, they develop patience, sportsmanship and teamwork.

The Little Champs Sports Center is available from ToysRUs. It was recently featured in the ToysRUs Toy Guide for Differently-Abled Kids. The Toy Guide is a joint project of ToysRUs and the National Lekotek Center.

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